Hate the cold!
One thing that I have noticed and I am sure you have too, is that while heat is bad for us because we cant function, the cold HURTS! Living in Saskatchewan has been great in every aspect except the winter. A month of between -30 and -40 does some not so nice things to me. Even though it is warming up I still feel the severe pain thru my whole body. Pain now shoots thru even my fingertips. Hopefully the summer will help.
The things yet to come
So I have now been going back and forth to the Dr.s and the lab having every test possible done. Sorry for the graphicness, but it is a reality. Not only do I now have to be on meds to control my bladder, but now I can't have bowel movements without meds. I am trying to come up with a way to look at this positively. I am having a hard time though. It makes me wonder what else is going to happen to my body because of this disease. I guess I can try to look at it as, there isn't much more that can give out. I feel like a used car. After you spend so much money fixing it up, eventually you have essentially made a new car. So by the age of 40 I will be a whole new person.
Lesson learned
Before I got sick, I tried to stay healthy by exercising when I could, and eating right. Not always an easy task with kids, but not impossible. I resently figured out the hard way that I can no longer do the same exercises or even stretches that I used to. I spent four days in bed because I stretched in a way that apparently my body doesn't like any more. So, lesson learned. I went online and printed a great booklet of "safe" stretches. Now exercising doesn't land me in bed for days.
Bad days happen
Yes, like I said, unfortunately there are days when bad things happen, and there is nothing we can do about it. This was one of those days. My kids were trying to make me smile (it worked) by doing impressions of me (they claim I am a neat freak, and perfectionist). I had just been crying (yes litteraly) over getting a 3.75 GPA for that semester in collage, because my computer froze and I couldn't finish my final exam in one of my classes. OK maybe in hindsight I over reacted a little, but that is what the diseases do to us. We think everything is a huge deal. Maybe it is, who knows, maybe we are the right ones and everyone else underreacts (probabally not though).